Q&A with our new Engagement and Support Officer in Wales

Introduce yourself.

Hi, I’m Bridget, Engagement and Support Officer for SWAN UK in Wales! I live in Mid Wales and have 10+ years of experience working and volunteering in the Welsh third sector. I am also a very proud mum to a daughter who has 22q11.2 Deletion Syndrome.

What most appealed to you about this role?

I am passionate about supporting and empowering families and children who are living with disability. Due to my experience of working with Welsh children’s charities, I was drawn to this role as it presented an exciting opportunity to make a real difference in the lives of people across Wales who are living with a rare or undiagnosed condition.

Can you tell us a bit about what your role involves?

I work closely with the wider SWAN UK team to provide specific communications and information sources for our Welsh families who are affected by rare and undiagnosed conditions. I am the first point of contact for SWAN UK members and Parent Reps in Wales, and I am responsible for organising and co-ordinating Welsh events. My role is to also raise awareness of our work by engaging and building relationships with a wide range of Welsh professionals within local community healthcare and educational settings.

What are you looking forward to most about your new role?

I am looking forward to having a presence on the ground in Wales which will enable me to really understand the issues facing SWAN UK families in Wales. Together, with the support of a strong and well-established team, I hope to provide a voice for families and help provide them with the support they need to face the challenges that come with raising a child with a rare or undiagnosed condition.

Tell us an interesting fact about yourself.

I once ran 13 half marathons in 13 consecutive days raising £10,000 for charity!

What can’t you live without?

Fresh air, walking up mountains and trails and exploring in the wide open countryside!

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