Supporting families affected by a syndrome without a name

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Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Our Big Ambition here at SWAN UK is that each of these families will have the support they need, when they need it.

You can help us achieve this ambition!

There is no science to fundraising – anyone can do it and there are endless ways of raising money. Why not drop us a line and we can have a chat about your ideas or suggest some ideas:

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