The latest news from SWAN UK...

Baby loss awareness week – Tamsin’s story

SPOOKY VIRTUAL HALLOWEEN BALLOON RACE

We’re recruiting: Engagement and Support Officer (SWAN UK – Cymru) / Swyddog Ymgysylltu a Chymorth (SWAN UK – Cymru)

UCD 2021: EMMA’S STORY

Trip to Blair Drummond Safari Park

Support and information

Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets which are available to download. We offer 24/7 information and support through our online forums for registered members.

the neman family

Get involved

Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Our Big Ambition here at SWAN UK is that each of these families will have the support they need, when they need it.

You can help us achieve this ambition!

There is no science to fundraising – anyone can do it and there are endless ways of raising money. Why not drop us a line and we can have a chat about your ideas or suggest some ideas: [email protected].

Join our Community Of Families