Dylan’s Story

Follow the ups (& downs) of our beautiful SWAN Dylan. With no diagnosis we have no prognosis leaving the world to be his oyster and anything is possible. At (almost) six years of age & on more daily drugs than an elderly person, potent injections, and having more tests, investigations and general aneathetics to count, day by day Dylan is defying the many many doctors involved in his care. Dylan is our six-year old – stuck in the body and mind of a baby. Dylan’s one diagnosis is ‘life-limiting’ so we cherish every single day. Meet Dylan our real life Peter ‘puzzle’ Pan.

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