Support & Information

Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose.

Without a diagnosis it can be difficult to access basic information and support – if you can't find the answer to your question in the resources below please email us: info@undiagnosed.org.uk.

Ellie's story explains what it means to have an undiagnosed genetic condition and how SWAN UK helps. Click the link to find out more.

https://www.youtube.com/watch?v=MBIncwM8rPc

 

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