Does your child have global developmental delay, learning disabilities and/or complex or multiple health issues?
Have you been given a diagnosis of a named condition that explains the cause of them?
Please check this box if you do not have a Facebook account
This information is optional. The answers are confidential and help us to apply for grants and further funding to extend the support offered by SWAN UK.
Do you consider yourself to have a disability?
Do you consider yourself to live in a rural area?
Add Second Parent
If you are registering details for two parents, please include separate email addresses for both parents if possible so that we can send you links to the SWAN UK Facebook groups that will be relevant for your family. In addition to our main and regional Facebook groups for all registered parents, we have separate groups for mums and for dads as well as a Parent Rep specifically for dads.
Internet Search
Research Project
Word of Mouth
Social Media
Event
Healthcare Professional
Patient Organisation
Doctor/Clinician
Friend/Family
Your data The information given on this form will be used to verify your eligibility for SWAN UK membership, to inform our planning and work, and to contact you as detailed below. It will be held according to, and will be subject to, the provisions of the Data Protection Act 1998. SWAN UK (syndromes without a name) will not share your details without your permission. By ticking the box below, you are agreeing to the information on this form being held by Genetic Alliance UK, the charity that runs SWAN UK. For more information on the way we use and store data, please read our Privacy Policy.
Contacting you In accordance with the Data Protection Act and the new General Data Protection Act (GDPR) with effect from 25 May 2018, we would like to use your details to keep you informed about our work and send you further information. Our use of your contact data includes, but is not limited to, sending invitations by email to join our private online forums (Facebook groups), sending a Welcome Pack, sending regular newsletters and sending information about family events. By ticking the box below, you are agreeing to be contacted in these ways.
Connecting you with a SWAN UK Local Parent Rep Some geographical areas have a SWAN UK Local Parent Rep, who are volunteers bound by the same confidentiality and equal opportunities policies as all SWAN UK staff. If a SWAN UK Parent Rep exists in your area we will automatically share your name and email address with them so they can make contact to invite you to local events. We will not share your contact details with other members without your permission.
In an effort to keep down costs and reduce paper waste, all correspondence from SWAN UK is via email. If you require paper copies of quarterly newsletters to be posted to you, please email joinus@undiagnosed.org.uk to let us know.
