News & Events

Undiagnosed Genetic Conditions Information Event: North Wales

Last Reviewed 10/04/2019

When

9/5/19 10:00 am - 9/5/19 2:00 pm

Where

Northop Hall Country House Hotel, Chester Road, CH7 6HJ, Wales

On 9 May 2019 we are holding our first ever North Wales-based information event for parents and carers who have children with undiagnosed genetic conditions.

SWAN UK Information Event

The event is a chance to come and find out more about:

  • Undiagnosed genetic conditions
  • Why some conditions are so hard to diagnose
  • Why testing can take so long
  • Hear an update about DDD (Deciphering Developmental Disorders) project and 100,000 Genomes Project
  • Plans for a new Welsh genomic medicine service

It’s also a great chance to meet other local families affected by undiagnosed genetic conditions and meet the North Wales SWAN UK Parent Rep, Bethan Edwards.

Please note – this event is for parents. We are unable to provide creche or activities for children but if not being able to find childcare is likely to prevent you from being able to attend please get in touch as we can work something out. If you are a professional and would like to attend please let us know.

Attendance is free and lunch will be provided.

If you would like to attend the event, please get in contact and let us know the names of the people/person attending and whether you have any dietary requirements: info@undiagnosed.org.uk

For more information please email: info@undiagnosed.org.uk

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