Genetic Alliance UK (the charity that runs SWAN UK) is inviting you to help shape the way that we talk about genome editing.
If you’re interested please complete the survey here by 19 March.
Genetic Alliance UK is running a series of workshops and online engagement events exploring the language, messages and implications of genome editing. They want to make sure we communicate in a way that patients identify with and that we use vocabulary and comparisons that mean something their audiences. They we want to help shape the way researchers, clinicians and the media talk about this topic.
Who can take part?
If you or a member of you family has a diagnosed or suspected rare or genetic condition they would like to hear from you. You need to be over 18 to take part.
How long does it take?
Each of session should only take 15 minutes. This applies to this survey, despite it having 10 pages.
Find out more and complete the survey by 19 March: