Does your child have global development delay (GDD) or learning/physical difficulties that are unexplained?
Has your child had genetic tests that have come back negative or with results of unknown clinical significance?
Is your child taking part in, or are you hoping they will take part in, genetic research such as Deciphering Developmental Disorders (DDD) or 100,000 Genomes Project?
If you answered yes to any, or all, of the above questions then come along to our free undiagnosed genetic conditions information events: Cardiff on 30 January, Southampton on 9 February and London on 1 March.
Speakers will include a parent of a child with an undiagnosed genetic condition. The talks will cover:
You will also be able to meet other local families with similar experiences.
As a member of SWAN UK you will be able to make contact with others who understand the unique challenges of raising a child affected by an undiagnosed genetic condition and attend our free family events.