News & Events

UNDIAGNOSED GENETIC CONDITIONs INFORMATION EVENTs 2018

Last Reviewed 13/12/2017

By Miriam Ingram, SWAN UK

Does your child have global development delay (GDD) or learning/physical difficulties that are unexplained?

Has your child had genetic tests that have come back negative or with results of unknown clinical significance?

Is your child taking part in, or are you hoping they will take part in, genetic research such as Deciphering Developmental Disorders (DDD) or 100,000 Genomes Project?

If you answered yes to any, or all, of the above questions then come along to our free undiagnosed genetic conditions information events: Cardiff on 30 January, Southampton on 9 February and London on 1 March.

Email info@undiagnosed.org.uk OR CALL 020 7831 0883 if you would like to attend. 

Speakers will include a parent of a child with an undiagnosed genetic condition. The talks will cover:

  • Why are some genetic conditions so hard to diagnose?
  • What are genetic tests? Why does genetic testing take so long?
  • What is life like raising a child with an undiagnosed genetic condition?
  • Update on Deciphering Developmental Disorders (DDD)/100,000 Genomes Project.

You will also be able to meet other local families with similar experiences. 

TO BOOK YOUR PLACE EMAIL: 

INFO@UNDIAGNOSED.ORG.UK OR CALL 020 7831 0883.

As a member of SWAN UK you will be able to make contact with others who understand the unique challenges of raising a child affected by an undiagnosed genetic condition and attend our free family events.

IF YOU WOULD LIKE TO BECOME A MEMBER OF SWAN UK PLEASE EMAIL: JOINUS@UNDIAGNOSED.ORG.UK.

 

 

 

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