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Welcome

Our Mission Statement:
To preserve and protect the health and promote the welfare of children who suffer from undiagnosed conditions.

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SWAN

  • Provides support and information on a variety of subjects.
  • Provides a listening ear through our helpline.
  • Links families together for mutual support and exchange of information.
  • Campaigns on behalf of families who have a child with an undiagnosed condition.

S. W. A. N. will be pleased to provide information and try to answer your queries.

If you have a child with an undiagnosed condition or are a professional working with children with un-named syndromes and you would like to become a member of S. W. A. N. please telephone our helpline on 01922 701234 or via email

Acknowledgements:
Grateful thanks to 'contact a family' who helped SWAN become a reality and for their continued advice and support.