Welcome

SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed conditions.

View parents comments here

SWAN UK is funded by the National Lottery through the Big Lottery Fund.

SWAN UK aims to:

• Develop a community of families with undiagnosed genetic conditions for mutual support and information sharing
• Develop a network of health and social care professionals with expertise in undiagnosed conditions
• Increase awareness and understanding of undiagnosed genetic conditions

S. W. A. N. will be pleased to provide information and try to answer your queries.

If you have a child with an undiagnosed condition or are a professional working with children with un-named syndromes and would like to become a member of SWAN UK please contact us on 0207 704 3141 or email SWAN@geneticalliance.org.uk.

To find out more about SWAN UK and read stories from families of undiagnosed children please visit our blog at www.swanuk.wordpress.com

You can also follow on Twitter @SWAN_UK or find us on Facebook under SWAN UK