News & Events

Stay in the know- the legal bit.

Last Reviewed 24/11/2016

By Kharishma Ballucksingh

We’re delighted so many people are getting on board to fundraise for SWAN UK! We want to make sure you stay safe and legal so please take a few moments to check out details below:


Legal requirements:


If you choose to fundraise for us please be safety conscious and aware of any legal requirements that may apply.

  • If you are producing any promotional materials, such as posters or leaflets, please contact fundraising@undiagnosed.org.uk for the appropriate logo format and brand guidelines. All materials must state ‘SWAN UK is run by Genetic Alliance UK, registered charity numbers 1114195 and SC039299’ and must be approved by SWAN UK.
  • If children are involved in fundraising, please make sure that they have permission from their parent or guardian, and are properly supervised by a responsible adult.
  • If you are planning to hold a raffle where tickets are sold before the day of the draw, please note that there are some legal guidelines around this. Please contact fundraising@undiagnosed.org.uk for more information
  • Consider what insurance you may need in place. Many external venues will have Public Liability Insurance, but you should always check with them that this will cover your event.
  • If you plan to sell alcohol at an event, you may require a licence from your local authority.
  • If you are planning to hold a public collection for SWAN UK, you will need a permit from your local authority. We would need to see a copy of this before issuing materials such as collection buckets.
  • If you plan to collect on private property such as a shopping centre, you must obtain permission from the landowner or manager.


Think safety! Please ensure that your event does not pose any risk to yourself or other people attending. Please note that we cannot accept any responsibility for any loss, damage or personal injury
Lottery Requirements:

  • An 'incidental non-commercial lottery' doesn't require any permissions or licences.These are held at non-commercial events, such as school fêtes. All ticket sales and draws must take place during the event.
  • All tickets must be sold at the location during the event and the result made public while the event takes place.
  • The promoters of the lottery cannot deduct more than £100 from the proceeds in expenses incurred, such as for the cost of printing tickets, hire of equipment, etc.
  • No more than £500 can be spent on prizes (but other prizes may be donated) and the raffle cannot involve a rollover of prizes.
  • If you are planning on selling tickets prior to the event, this falls under the terms of a 'small society lottery' and a licence is required. You can get this from your local authority.

Click on the link below for more information on the legal requirements when holding a raffle.
http://www.gamblingcommission.gov.uk/Gambling-sectors/Lotteries/Getting-a-licence/Do-I-need-a-licence/Circumstances-in-which-you-do-not-need.aspx#Fundraising.


For more information, or if you have a specific question please email me - fundraising@undiagnosed.org.uk

Join our community of families

Join us