Hi, I’m Tina from Telford, Shropshire. I live with my five-year-old son called Oliver and 13 pets that consist of two dogs, two cats, a parrot, a tarantula, a snake, a lizard and five chickens … so not a quiet household! Oliver is non-verbal with Global Developmental Delay, sensory processing disorder, bilateral squint, chronic lung disease, balanced translocation of chromosomes six and eleven, enlarged tongue, dysmorphic features and autism. His life threatening issues come from having vocal cord paralysis, a floppy larynx and a restricted airway which means he can’t have liquids or lumpy food. Everything he has is pureed and he is also PEG fed. Oliver also requires oxygen when he gets any sort of cold or chest infection. For a long time I didn’t know where to find support regarding all of Oliver’s complex medical issues and joined separate groups for each illness that Oliver has, so when I found SWAN UK and realised that we weren’t alone it was such a huge relief and amazing to be part of a group that understand my stresses and issues. I realised that there are so many families struggling without support and so decided I would like to help and become a Parent Rep to reach out to as many families within Shropshire as possible.
Parent Rep, Shropshire