Hi, I’m Sara and I live in Leeds with my husband Dave and our two swans, Aidan who is six and Rhiannon who is 11. I’m also a swan myself. Aidan is the youngest and is more complex and that’s how we found out about SWAN UK. I was on a feeding tube awareness page when SWAN UK popped up on the screen and I thought ‘oh my god, that’s us’. We’ve been members for four years now and since finding SWAN UK I no longer feel alone.
I am a qualified rugby league coach for the Rugby Football League and used to volunteer for them before as well as the Church Lads & Church Girls Brigade before I got ill. I’ve also been a moderator for another organisation’s message board where I helped to support other families using my own experience, which is what I want to do again with SWAN UK.
I’d considered being a Parent Rep for a while as I’d arranged a few coffee mornings for SWAN UK members in West Yorkshire and I thought it seemed to be next logical step. I want to give support back to others while things are stable for our family, especially for new members who are feeling alone like we did all those years ago.