As Communications and Support Manager for SWAN UK, I work to raise awareness of undiagnosed genetic conditions and the support that SWAN UK offers. I manage the SWAN UK communications channels and work closely with families to share their experiences. I also manage relationships with external stakeholders including media, charitable organisations and healthcare professionals.
I am part of the wider Genetic Alliance UK communications team and I help make families and professionals aware of opportunities they can get involved in and new developments which affect the undiagnosed community. I am the first point of contact for SWAN UK enquiries and enjoy organising family and information events.
I have a background in journalism, marketing and events and am passionate about giving people a platform to tell their stories.