My role as Engagement and Support Officer for SWAN UK Wales is to provide specific information and support to our SWAN UK community in Wales. I am the first point of contact for our Welsh families who are affected by rare and undiagnosed conditions and work closely with our Welsh Parent Reps to engage and support our members through a variety of different channels. Prior to joining Genetic Alliance UK, I was Regional Fundraiser for Cerebral Palsy Cymru and I have also been an ambassador for Ty Hafan Children’s Hospice for ten years. I have a degree in International Relations and am also a very proud mum to a daughter who has 22q11.2 deletion syndrome.
ENGAGEMENT AND SUPPORT OFFICER (WALES)