On Friday 14 June 2019 we are holding an undiagnosed genetic conditions information event at Mary Rose Academy, Portsmouth.
The event will cover topics such as:
- Undiagnosed genetic conditions
- Why some conditions are so hard to diagnose
- Why testing can take so long
- Updates on DDD (Deciphering Developmental Disorders) project and 100,000 Genomes Project
It’s also a great chance to meet SWAN UK Parent Rep for Portsmouth, Jo Wright, and other local families affected by undiagnosed genetic conditions.
Please note – this event is for parents. We are unable to provide creche or activities for children but if not being able to find childcare is likely to prevent you from being able to attend please get in touch as we can work something out. If you are a professional and would like to attend please let us know.
Attendance is free and lunch will be provided.