undiagnosed genetic conditions information event: Exeter

We are holding an information event for parents and carers who have children with undiagnosed genetic conditions.

At the event you will be able to:

  • Meet other parent carers of children with undiagnosed genetic conditions
  • Explore why getting a diagnosis can be such a lengthy process and why some children remain undiagnosed
  • Get an update about what’s happening with the DDD study and find out more about the 100,000 Genomes Project
  • Hear SWAN UK members share their experiences of raising a child with an undiagnosed genetic condition
  • Find out more about the support that SWAN UK offers.

Attendance is free but places are limited so booking is essential. To book email: [email protected] or call (0)20 7831 0883

For more information please email [email protected]

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