UCD 2021 – Hayley’s story

Hello, my name is Hayley and I live in County Durham with my partner and our three children Maddie (16), Jay (12) and our little swan Harrison (six).

Harrison is currently undiagnosed – he has multiple disabilities including a shrinkage of his cerebellum, dystonia, visual impairment, global development delay and so much more. He has had lots of tests and so far there is nothing to explain his disabilities.

SWAN UK is, and has been, our primary support organisation and we have been members now for about three years.

Having an undiagnosed child is one of the toughest journeys we have ever been through as a family, the biggest challenge is the not knowing and the constant worry for his future, but with SWAN UK I have never felt alone or unsupported.

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