SWAN UK (syndromes without a name) and its members have appeared in a wide range of publications. Please click the links below to find out more.
We can provide information about SWAN UK and what it means to have a syndrome without a name. We can also arrange interviews with affected families.
Get in touch by emailing:
[email protected] or calling 020 7831 0883.
Oldham Chronicle: Girl’s haircut aids children
My Family Our Needs: My undiagnosed child – a parent’s story
My Family Our Needs: Undiagnosed Children’s Day
Europe Breaking News: Lawrence, 6, has undiagnosed condition which might never be named
Special Needs Jungle: Tilly’s “tried on” lots of diagnoses, but none fit her mystery ultra-rare condition
Newton News Daily: Aycliffe family bag pack for charity
Spalding Today: A special day to raise awareness of undiagnosed
East London and West Essex Guardian: Ongar mother hails ‘vital’ charity
The Press and Journal: The north-east youngster with a condition so rare it doesn’t have a name
Tooting Daily: Charity Danceathon takes place at St George’s University
Leamington Courier: Warwick couple marking Undiagnosed Children’s Day for their son
Warwick Courier: Warwick couple marking Undiagnosed Children’s Day for their son
HuffPost Parent Voices: The lack of answers when your child is undiagnosed
Roald Dahl: Undiagnosed Children’s Day
The Mighty: When your child has ‘no unifying diagnosis’
HuffPost The Blog: Back when ‘I just knew’
Basildon Canvey Southend Echo: Fantasy Island so lovely to our Jake