SWAN UK in the media 2017

SWAN UK (syndromes without a name) and its members have appeared in a wide range of publications. Please click the links below to find out more.

We can provide information about SWAN UK and what it means to have a syndrome without a name. We can also arrange interviews with affected families.

Get in touch by emailing:

[email protected] or calling 020 7831 0883.

Oldham Chronicle: Girl’s haircut aids children

My Family Our Needs: My undiagnosed child – a parent’s story

My Family Our Needs: Undiagnosed Children’s Day

Europe Breaking News: Lawrence, 6, has undiagnosed condition which might never be named

Special Needs Jungle: Tilly’s “tried on” lots of diagnoses, but none fit her mystery ultra-rare condition 

Mojomums: Many thousands of families affected by undiagnosed genetic conditions are not accessing support

The Northern Echo: Newton Aycliffe boy with an undiagnosed genetic condition wins army of admirers with cheeky grin

Newton News Daily: Aycliffe family bag pack for charity

Spalding Today: A special day to raise awareness of undiagnosed

East London and West Essex Guardian: Ongar mother hails ‘vital’ charity

The i: ‘I just want to know what’s wrong with my child’: the families suffering no diagnosis

The Press and Journal: The north-east youngster with a condition so rare it doesn’t have a name

Tooting Daily: Charity Danceathon takes place at St George’s University

Leamington Courier: Warwick couple marking Undiagnosed Children’s Day for their son

Warwick Courier: Warwick couple marking Undiagnosed Children’s Day for their son

HuffPost Parent Voices: The lack of answers when your child is undiagnosed 

Rainbow Trust: Family supported by Rainbow Trust speak about their son’s illness to raise awareness for Undiagnosed Children’s Day

Roald Dahl: Undiagnosed Children’s Day

The Mighty: When your child has ‘no unifying diagnosis’

Firefly: 5 things I didn’t know about Undiagnosed Genetic Conditions

HuffPost The Blog: Back when ‘I just knew’

Basildon Canvey Southend Echo: Fantasy Island so lovely to our Jake

Broadly Vice: When Your Child Has a Rare Medical Condition Doctors Can’t Diagnose

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