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June 11, 2018

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Parenting a baby born after loss

The Pot of Gold

PrevPrevious‘Like trying to read a map in the dark’ syndromes without a name, service use and further research

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What does SWAN or being undiagnosed mean?
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Undiagnosed – a documentary

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What does SWAN or being undiagnosed mean?
Why is a diagnosis important?
How can I access genetic testing?
Undiagnosed – a documentary

Genetic Alliance UK provides the secretariat for the following parliamentary groups on Rare, Genetic and Undiagnosed Conditions:

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Scottish CPG

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Westminster APPG
Welsh CPG
Scottish CPG

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