Breaking Down Barriers

We are one of ten organisations taking part a project called Breaking Down Barriers which aims to help patient organisations and support groups join together to share examples of best practice, develop new guidelines to highlight effective ways to support families at increased risk of having a child with a genetic disorder and address difficulties and inequalities experienced by families in accessing mainstream services.

We are focusing on engaging with Asian families who have children with undiagnosed genetic conditions as we know that SWAN UK is not effectively supporting them. We have had our genetic information leaflets translated into Urdu and are planning to make an accompanying film. We will also be talking to parents to discuss their support needs.

If you read Urdu and would be interested in reviewing our translations please email miriam. [email protected].

To find out more about the project visit: breaking-down-barriers.

Join our Community Of Families