Our Parent Reps form a large part of our team. They are SWAN UK members who volunteer a few hours each week to act as a point of contact in their local area. The activities undertaken by each Parent Rep varies but often includes networking with local professionals and services, helping coordinate events and coffee meets for other local SWAN UK members and sharing information. Click here to find out more about the support they can offer.
We also have SWAN UK bloggers who write about their experiences of raising a child with a syndrome without a name.
If you would like to find out more about joining the Parent Rep team or becoming one of our bloggers please email: [email protected]
Our work is supported by the wider Genetic Alliance UK team.