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• Syndromes without a name and why they can be so hard to diagnose
• Real life stories from the families we support
• The advancements in genomics that are providing new hope for diagnosis
• Our virtual and real world events
• How you can get involved and support our work

We take your privacy very seriously, you can read more about how we will protect and process your data in our privacy policy.  You can unsubscribe from our mailings at any time by clicking on the ‘unsubscribe’ button at the bottom of our emails or by emailing info@undiagnosed.org.uk with the subject ‘Unsubscribe’.

If you are a family affected by a syndrome without a name, you can also join our community to get access to our events and members only online groups by completing our registration form.