News & Events

JOIN OUR WEBINAR ON THE ANONYMISATION OF GENETIC DATA

Last Reviewed 08/05/2017

When

10/05/2017, 12:00 - 10/05/2017, 13:00

Where

Online

If my child's DNA is unique to them then how can it possibly be anonymised when we take part in research?

If my child sees lots of specialists and doctors how can I be confident that their details are kept confidential but also shared as needed?

How do I know my child's data is stored safely? What are the risks? 

Join our webinar to find out the answers to these questions and more on Wednesday 10 May at 12pm.

We will be joined by Louise Coleman, Policy Officer at Genetic Alliance UK (the charity that runs SWAN UK) and Natalie Banner who will be speaking about the work of Understanding Patient Data, the independent taskforce set up last year to help support better conversations about the uses of health information.

Joining the webinar is easy
just register here and then you will be sent a confirmation email with a link and instructions on how to join. 

If you are unable to log in on Wednesday don't panic, send us your questions anyway
 a recording will be available to watch afterwards as a video, just drop us an email for more information: info@undiagnosed.org.uk

Join our community of families

Join us