About the role
To work with the Director of Support and the SWAN UK team to develop, maintain and provide high quality support and information for the SWAN UK community and SWAN UK Parent Representatives. As a member of the communications team, the post holder will lead on producing engaging content to raise awareness of undiagnosed genetic conditions and for our annual awareness day, Undiagnosed Children’s Day. They will also support the activities of our SWAN UK Local Networks and drive to increase membership. This post is full time (35 hours a week), office based for a fixed term of 12 months and subject to a six-month probation period.
Raise awareness of undiagnosed genetic conditions.
- Develop relevant and high-quality information across multiple communication channels to increase engagement and understanding of the impact of undiagnosed genetic conditions.
- Help develop and implement the communications strategy for the annual Undiagnosed Children’s Day and monitor its impact.
- Recruit volunteers from the SWAN UK community to share their stories, be media volunteers and take an active role in our outreach activities.
Produce SWAN UK social media and website content and produce regular newsletters.
- Produce vibrant social media content that is consistent with organisational messaging.
- Coordinate the production of the monthly E-News and quarterly newsletters, ensuring SWAN UK members, Parent Representatives and relevant team members have the opportunity to contribute.
Help maintain, facilitate and develop our community of families and team of volunteer Parent Representatives.
- Support the SWAN UK community, ensuring high levels of online engagement.
- Act as a first point of contact for all SWAN UK enquiries.
- Liaise with the SWAN UK Project Support Officer to maintain Parent Representatives and provide ongoing support to existing Parent Representatives.
- Work with the SWAN UK team and SWAN UK Parent Representatives to support the SWAN UK calendar of activities, including information events, workshops, family events and Local Network activities.
- Assist with promotion of all events to ensure high attendance rates, and continued engagement of first time attendees.
- Occasional attendance at events as required.
Assist with the monitoring of our work against specified project outcomes.
- Maintain records of activities and the impact of our work.
Work closely with other Genetic Alliance UK staff to ensure joined up and consistent communications on cross cutting themes.
- Be a member of the Communications team.
- Liaise with the fundraising officer to ensure regular fundraising content.
- Any other tasks as reasonably required by Genetic Alliance UK, including some evening and weekend work involving over-night stays.
Education and qualifications
- Graduate level or equivalent experience.
Essential qualities, skills and experience
- High level of IT literacy with experience of social media platforms including Facebook, Twitter and Instagram.
- Outstanding written and verbal communication skills with a strong attention to detail.
- An empathetic attitude and enthusiasm for understanding of the complexities and impact undiagnosed and rare genetic conditions can have on family life.
- Experience of producing and editing content for varied publications and platforms tailored according to the audience.
- Excellent organisational skills and the ability to effectively and independently organise own time, plan ahead, keep records and manage and prioritise deadlines.
- A creative, ideas driven attitude with the ability to demonstrate initiative whilst working as part of a team.
- Ability to work occasional evenings and weekends and occasionally travel in the UK, including some overnight stays.
- A commitment to the aims and objectives of Genetic Alliance UK and SWAN UK.
Desirable qualities, skills and experience
- Experience of using web applications like Mailchimp, Canva, Hootsuite and the Adobe suite, particularly Indesign, Photoshop and Premier Pro.
- Experience of working with families of disabled children.
- Experience of working with volunteers in a paid or voluntary capacity.
- Experience of organising events.
- Knowledge of the UK education, health and social care system.
- Deadline for applications: 09:00, Monday 11 February.
- Interview date: Monday 25 February.
- Start date: Monday 1 April (or as near to this date as possible).
Please email a CV and cover letter to: Lauren Roberts, Director of Support: firstname.lastname@example.org. Please save your documents as Fullname.CV and Fullname.Coverletter and state your name and post applied for in the email subject line.
Your cover letter should explain why you are suitable for this post in relation to the Person Specification and include examples of previous work, whenever possible.Applications without cover letters will not be considered.