News & Events

UNDIAGNOSED GENETIC CONDITIONS INFORMATION EVENT: Portsmouth

Last Reviewed 20/05/2019

When

14/6/19 10:00 am - 14/6/19 2:00 pm

Where

Mary Rose Academy, Gisors Rd, Portsmouth, Southsea, PO4 8GT

On Friday 14 June 2019 we are holding an undiagnosed genetic conditions information event at Mary Rose Academy, Portsmouth. 

The event will cover topics such as:

  • Undiagnosed genetic conditions
  • Why some conditions are so hard to diagnose
  • Why testing can take so long
  • Updates on DDD (Deciphering Developmental Disorders) project and 100,000 Genomes Project

It’s also a great chance to meet SWAN UK Parent Rep for Portsmouth, Jo Wright, and other local families affected by undiagnosed genetic conditions.

Please note – this event is for parents. We are unable to provide creche or activities for children but if not being able to find childcare is likely to prevent you from being able to attend please get in touch as we can work something out. If you are a professional and would like to attend please let us know.

Attendance is free and lunch will be provided.

IF YOU WOULD LIKE TO ATTEND THE EVENT, PLEASE GET IN CONTACT AND LET US KNOW THE NAMES OF THE PEOPLE/PERSON ATTENDING AND WHETHER YOU HAVE ANY DIETARY REQUIREMENTS: [email protected]

FOR MORE INFORMATION PLEASE EMAIL: [email protected]

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