News & Events

undiagnosed genetic conditions information event: Exeter

Last Reviewed 30/10/2018

When

22/11/18 10:00 am - 22/11/18 2:00 pm

Where

Royal Devon & Exeter NHS Foundation Trust
Barrack Road
Exeter
EX2 5DW

We are holding an information event for parents and carers who have children with undiagnosed genetic conditions.

At the event you will be able to:

  • Meet other parent carers of children with undiagnosed genetic conditions
  • Explore why getting a diagnosis can be such a lengthy process and why some children remain undiagnosed
  • Get an update about what’s happening with the DDD study and find out more about the 100,000 Genomes Project
  • Hear SWAN UK members share their experiences of raising a child with an undiagnosed genetic condition
  • Find out more about the support that SWAN UK offers.

Attendance is free but places are limited so booking is essential. To book email: info@undiagnosed.org.uk or call (0)20 7831 0883

For more information please email info@undiagnosed.org.uk

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