Throughout April we’re running an Instagram Challenge so we thought we’d extend the fun! We’d love to have blog posts based on the same themes to share that provide a snap shot of life raising an undiagnosed child. We also want to hear from you if your child has received a diagnosis.
We’ve highlighted in pink the themes we’d love you to write about but feel free to pick any you like. Posts can be long or as short you don’t have to be the parent of an undiagnosed child to take part.
1. Follow @swanchildrenuk on Instagram and @SWAN_UK on Twitter.
2. Choose the theme you fancy to write about from the list below (feel free to choose more than one!) and get writing. Please share you posts via Facebook if you’re a SWAN UK member or email firstname.lastname@example.org.
3. Post a link to your post along with a photo to Instagram, using the hashtag #undiagnosed and/or share with us on Twitter.
4. Don’t forget to tag @swanchildrenuk in your post so we can repost/share.
By getting involved you will be helping us to raise awareness of undiagnosed genetic conditions and the support that SWAN UK offers to families.
Undiagnosed Children’s Day is a nationwide event where we increase awareness of undiagnosed genetic conditions and raise funds to support SWAN UK (syndromes without a name). SWAN UK is the only dedicated support network available in the UK for families of children with undiagnosed genetic conditions.