Claudia was part of a panel alongside two other people whose lives have been affected by undiagnosed, genetic conditions. The panel were asked questions about their experiences of interacting with NHS staff and how they had found their encounters discussing their or their child’s undiagnosed genetic condition.
The panel discussed:
- Their positive and negative experiences with NHS staff
- How they felt when they first heard the phrase ‘genetic condition’
- Simple things staff could have done to make negative experiences more positive
- Tips of how staff could improve their communication with patients
As well as discussing their personal journeys the panel answered questions from the audience. Lots of the audience members were NHS staff who wanted to learn how they could improve the way they communicated with patients affected by genetic syndromes. The event was a great opportunity for NHS staff to find out more about how patients found their personal journeys with undiagnosed genetic syndromes.
CLICK HERE TO WATCH A RECORDING OF THE EVENT.
IF YOU WANT TO FIND OUT MORE ABOUT THE TALKING GENOMICS WITH PATIENTS EVENT PLEASE DROP US AN EMAIL: [email protected]
OR, IF YOU’D LIKE TO GET IN TOUCH WITH CLAUDIA ABOUT HOW SHE FOUND THE EVENT, OR ANYTHING ELSE, YOU CAN EMAIL: [email protected]