Remember Me
SWAN UK (syndromes without a name) and its members have appeared in a wide range of publications. Please click the links below to find out more.
We can provide information about SWAN UK and what it means to have a syndrome without a name. We can also arrange interviews with affected families.
Oldham Chronicle: Girl’s haircut aids children
My Family Our Needs: My undiagnosed child – a parent’s story
My Family Our Needs: Undiagnosed Children’s Day
Europe Breaking News: Lawrence, 6, has undiagnosed condition which might never be named
Special Needs Jungle: Tilly’s “tried on” lots of diagnoses, but none fit her mystery ultra-rare condition
Mojomums: Many thousands of families affected by undiagnosed genetic conditions are not accessing support
The Northern Echo: Newton Aycliffe boy with an undiagnosed genetic condition wins army of admirers with cheeky grin
Newton News Daily: Aycliffe family bag pack for charity
Spalding Today: A special day to raise awareness of undiagnosed
East London and West Essex Guardian: Ongar mother hails ‘vital’ charity
The i: ‘I just want to know what’s wrong with my child’: the families suffering no diagnosis
The Press and Journal: The north-east youngster with a condition so rare it doesn’t have a name
Tooting Daily: Charity Danceathon takes place at St George’s University
Leamington Courier: Warwick couple marking Undiagnosed Children’s Day for their son
Warwick Courier: Warwick couple marking Undiagnosed Children’s Day for their son
HuffPost Parent Voices: The lack of answers when your child is undiagnosed
Rainbow Trust: Family supported by Rainbow Trust speak about their son’s illness to raise awareness for Undiagnosed Children’s Day
Roald Dahl: Undiagnosed Children’s Day
The Mighty: When your child has ‘no unifying diagnosis’
Firefly: 5 things I didn’t know about Undiagnosed Genetic Conditions
HuffPost The Blog: Back when ‘I just knew’
Basildon Canvey Southend Echo: Fantasy Island so lovely to our Jake
Broadly Vice: When Your Child Has a Rare Medical Condition Doctors Can’t Diagnose
