By By SWAN UK Blogger and parent rep for warwickshire, aimee mann - aimeemannmentoring.com
As we celebrate the 70th anniversary of the NHS, I want to thank you so much from the bottom of my heart.
Being told at my 20 week scan that my baby would be disabled but no one knew how severely, was totally shocking. Being sent home after the birth with no support and a ‘wait and see’ attitude from everyone around was frightening.
It wasn’t until we moved, when Freddie was around nine months old, that we met you Nicky. We had seen around four different Health Visitors between birth and nine months and none had really shown any support or understanding or in fact even read his notes. I hated those baby weigh in clinics. Then we moved and found someone who went the extra mile at every meeting and every phone call.
You made such a huge impact on our lives.
You read his file, you researched, you listened, and you had experience of children who weren’t developing as expected.
When you have no diagnosis for your child’s disability, it’s a hard path. I remember Ollie and I going to the clinic to discuss his nine month review. We started the questions and couldn’t answer yes to a single one.
We felt so defeated and all the positivity (denial) we had forged on with was crushed. About half way though, it was clear we wouldn’t be able to answer yes to any of the questions. Nicky, you said we would leave it and not bother with it any more. Freddie was on his own trajectory so let’s focus on what he needs. Up until this point, no one had mentioned physiotherapy, occupational therapy, play therapy, portage or speech and language therapy. Bear in mind we had a paediatrician, four health visitors and the GP plus we had spent time in the special care baby unit. We were pretty clueless.
You were the first person to really get it. You set up the referrals to the various therapies to support Freddie. If we hadn’t moved house and met you, I truly believe Freddie would have been a lot further behind in his development than he is now.
Thank you for caring, going the extra mile and making such a positive difference to his life.