By swan uk member and parent rep for dorset, sasha mcdowell
Eiden is our tiny five and half year old – 80cm tall and weighing 10kg. He wears 12 to 18 month clothes and has complex health issues.
He can’t eat or drink orally, stand or walk and he can’t talk. He has brittle bones and an abnormally flexible body although some of his joints are fused together. Developmentally he is around 18 months old.
The events we’ve attended have been magical for our family.
Eiden rode a bike for the first time and this year he even played with another child. They shared a toy and a book, which is a major breakthrough. We watched in awe as he made a friend and we have planned to meet again.