JOIN THE SWAN UK COMMUNITY

Membership is free for any family in the UK searching for a genetic diagnosis for their child.

BENEFITS OF JOINING SWAN UK

  • Make contact with other families who understand the unique challenges of raising a child affected by an undiagnosed genetic condition.
  • Access peer-support and activities to support your mental well-being as you navigate the challenges of parenting an undiagnosed child.
  • Attend fun events for all the family – currently we are running regular virtual discos and hope to start face to face events again soon.
  • Access 24/7 information and support from our online forums.
  • Help raise awareness by speaking at events, sharing your story or even coming to Westminster with us to talk to MPs about the issues affecting your family.
  • Develop your personal and professional skills by volunteering as a SWAN UK Parent Rep.

 

‘Without a diagnosis there was no place for me in groups/organisations for diagnosed conditions and syndromes. It is important for me to have somewhere where we are all ‘in the same boat’ even though our children have varying needs and difficulties.’ 

 

HOW TO JOIN SWAN UK

All you need to do is click the ‘register to join our community’ button above and complete the form to register online. We will then be in contact with your welcome pack and details of how to join our forums.

If you have any difficulty completing the online form please email [email protected] or call us on 0300 124 0441.

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Join our Community Of Families