Get Involved2019-06-24T13:35:34+00:00

Get Involved

Each year approximately  6,000 children are born in the UK with a syndrome without a name- a genetic condition so rare it is unlikely to be diagnosed. Without a diagnosis life can be very isolating for families, often they feel as if they don’t fit in and it can be very difficult to answer questions about their child. SWAN UK provides an important network supporting parents and siblings of children with undiagnosed genetic conditions.

Help us to keep providing this vital support and information to these families!

Download a SWAN UK fundraising pack for free

Summer Picnic

Join us for a Summer Picnic to raise money for SWAN UK!

This year we’re encouraging you to take advantage of the sunshine (fingers crossed!)and raise money for a great cause. We’re asking you to host a summer picnic in your local park or at home in your garden and invite all your family and friends to join you. Each attendee can make a suggested donation of  £5 to SWAN UK to join in the fun.

Funds raised will go towards running whole family events for the SWAN UK community, giving them a chance to connect with others, relax and enjoy making precious memories.

We can support your picnic by sending you a free pack full of games ideas, a nature checklist, a poster, collection box and SWAN UK cake flags & bunting.

Download your Summer Picnic Pack here or get in touch and someone from the fundraising team will be happy to talk things through: [email protected]

Challenge Events

Set yourself a challenge that people can sponsor you to do. Get active and walk, run, swim, cycle, skydive to raise money for SWAN UK, there are events all over the UK throughout the year and to suit all abilities. We are happy to support you in whatever challenge you choose individually or get together as a group.

The best way to raise money doing one of these challenges is to set up a Just Giving or a Virgin Money Giving page, that way people can easily donate to your event and find out what you are doing, just select SWAN UK as your chosen charity, donations come straight to us including any gift aid.

Alternatively download our sponsorship form here.

If you need any help finding a challenge to suit you then drop us an email: [email protected]

Organise your own fundraising

There are so many ways you can get involved in fundraising: coffee & cake sales, community quiz nights, host an event,  hold a local collection, get sponsored. Fundraising events, however big or small are a great way to get people involved, spread awareness of SWAN UK and raise money for a good cause.  Get your school, community group, local sports club or your workplace to join in too. We are open to any ideas and suggestions so get in touch: [email protected]

Make sure you shout it out on social media: we are on Facebook Donate, a really easy way to get your online community of friends to support your cause. You can create a Facebook Fundraiser page (click ‘Fundraisers’ in the left menu of your News Feed and follow the instructions) and add a Donate button to your page that means people can easily donate directly to SWAN UK.

For more ideas download a SWAN UK fundraising pack here

Order a free SWAN UK collection tin here

Download our SWAN UK sponsorship from here

cakes
workplace fundraising

Corporate fundraising, get your employer involved

Get your employer or employees involved in fundraising. Take on a  group challenge event like a half marathon, hike or an obstacle race and raise money that way. We have plenty of team activities we can help organise for you. There have been some fantastic fundraising efforts from companies getting together to do a challenge as a group, plus it’s a great team building activity. Ask about match funding, get your boss to match whatever you fundraise as team to top up your donation.

Or simply hold a cake sale, have a dress down Friday, silly hat day or have a collection box in the staff room to get people to donate their loose change.

Order a free SWAN UK collection tin here

Charity of the Year: many companies will nominate a charity of the year or make one-off donations throughout the year and businesses often chose a charity that has some personal significance to one of their employees. It would be great if you could nominate SWAN UK to your employer, we can help you with any application processes if necessary just email: [email protected]

Sending your money to us

Please send your donations to us as soon as you have finished your fundraising, here’s how to get the money to us:

  • Donate via the website: using a credit or debit card donate
  • Cheques: please make payable to SWAN UK or Genetic Alliance UK and send to Genetic Alliance UK, CAN Mezzanine, 49-51 East Road, London, N1 6AH.  Please include a note to say how the money was raised with your contact details so we can send you a well deserved thank you letter !
  • Bank transfer: if you want to transfer your collected funds to us email [email protected] and we will send you the details.
  • Cash: Please do not send cash as we are unable to accept cash donations.

Download our donation form here- don’t forget to tick the box for GiftAid