MY CHILD HAS A DIAGNOSED RARE DISEASE/CONDITION, CAN I JOIN SWAN UK?

The aim of SWAN UK is to support families who are affected by undiagnosed genetic conditions. Within our community we also have some members whose children have been diagnosed with a very rare genetic condition for which no other support exists. Some families join our community after receiving a very rare diagnosis from genetic sequencing.

If your child has a diagnosed rare disease or genetic condition for which an established support group already exists, you will not be able to join SWAN UK.

By |2018-07-23T12:47:03+01:00July 23rd, 2018|0 Comments

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