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Urdu video press release

Urdu video press release

Oxford undiagnosed genetic conditions information event press release

Oxford undiagnosed genetic conditions information event press release

SWAN UK in the media 2017

SWAN UK in the media 2017

Introducing SWAN Europe

Introducing SWAN Europe

UNDIAGNOSED CHILDREN’S DAY 2017 press release

UNDIAGNOSED CHILDREN’S DAY 2017 press release

SWAN UK secures three year grant from the Big Lottery Fund

SWAN UK secures three year grant from the Big Lottery Fund

Case study: Georgia

Case study: Georgia

Teaming up with Thomas Cook Children’s Charity

Teaming up with Thomas Cook Children’s Charity

Undiagnosed Children’s Day 2016 press release

Undiagnosed Children’s Day 2016 press release

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Information

  • What is a syndrome without a name?
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  • Undiagnosed – a documentary

Genetic Alliance UK provides the secretariat for the following parliamentary groups on Rare, Genetic and Undiagnosed Conditions:

  • The Westminster All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions
  • The Scottish Parliament Cross-Party Group on Rare, Genetic and Undiagnosed Conditions
  • The Welsh Assembly Cross-Party Group on Rare, Genetic and Undiagnosed Conditions

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© Genetic Alliance UK 2018

SWAN UK is a support network run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.

 

Genetic Alliance UK registered charity numbers: 1114195 & SC039299.

 

Registered company number: 05772999