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  • Genetic Alliance UK /
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  • Family Story

Sabrina’s story

Sabrina’s story

Bonkers

Reaching new heights for SWAN UK

Reaching new heights for SWAN UK

Family Story: Lyndsay and Jack

Family Story: Lyndsay and Jack

Introducing: Claudia and Trent

Introducing: Claudia and Trent

Introducing: Simon and Kathy

Introducing: Simon and Kathy

Introducing: Louise and Evan

Introducing: Louise and Evan

Family Story: Rachel and Connor

Family Story: Rachel and Connor

Family Story: Rebecca and Felix

Family Story: Rebecca and Felix

FAMILY STORY: ALEX AND BENJI

FAMILY STORY: ALEX AND BENJI

FAMILY STORY: ARTHUR AND CLARE

FAMILY STORY: ARTHUR AND CLARE

Family Story: Demi and Ryan

Family Story: Demi and Ryan

Family story: Jemma and Atticus

Family story: Jemma and Atticus

Family Story: Ali and Coral

Family Story: Ali and Coral

FAMILY STORY: LUCAS AND SIAN

FAMILY STORY: LUCAS AND SIAN

Sibling Story: Allana and Bronwyn

Sibling Story: Allana and Bronwyn

Family story: Amelia

Family story: Amelia

Sibling Story: Scarlett and Dylan

Sibling Story: Scarlett and Dylan

Losing our baby – baby loss awareness week

Losing our baby – baby loss awareness week

Brave like a lion: Tilly

Brave like a lion: Tilly

Brave like a lion: Evana

Brave like a lion: Evana

Brave like a lion: Abbie

Brave like a lion: Abbie

Brave like a lion: Georgia

Brave like a lion: Georgia

Brave like a lion: Oscar

Brave like a lion: Oscar

Dad’s story: Alexandra

Dad’s story: Alexandra

Liz Toft shares her experiences of social care with MPs

Liz Toft shares her experiences of social care with MPs

Getting a diagnosis: Reuben and Faith

Getting a diagnosis: Reuben and Faith

Getting a diagnosis: Our story

Getting a diagnosis: Our story

Getting a diagnosis: Chloe

Getting a diagnosis: Chloe

Caiden

Caiden

Jack

Jack

TEDDIE

TEDDIE

TEDDY

TEDDY

Atticus

Atticus

GETTING A DIAGNOSIS: RUBEN AND FAITH

GETTING A DIAGNOSIS: RUBEN AND FAITH

CHROMOSOME DISORDERS AWARENESS WEEK

CHROMOSOME DISORDERS AWARENESS WEEK

LILA

LILA

Why is Eleni undiagnosed and what makes her rare?

Why is Eleni undiagnosed and what makes her rare?

Finley

Finley

Riley Rae

Riley Rae

Journey to diagnosis: Madelyn

Journey to diagnosis: Madelyn

Journey to diagnosis: Sophie

Journey to diagnosis: Sophie

DAD’S STORY: Finlay

DAD’S STORY: Finlay

Dad’s story: Riley

Dad’s story: Riley

DAD’S STORY: Tabby

DAD’S STORY: Tabby

DAD’S STORY: max

DAD’S STORY: max

DAD’S STORY: Ella

DAD’S STORY: Ella

Dad’s story: Cameron

Dad’s story: Cameron

Why We Went On To Have Two More Children After Having A Child With Special Needs

Why We Went On To Have Two More Children After Having A Child With Special Needs

Sibling story – Erin

Anna

Anna

International Men’s Day

International Men’s Day

Sibling story – Abbie

Sibling story – Abbie

Sibling story – Thea

Sibling story – Thea

Sibling story – Will

Sibling story – Will

Sibling story – Sean

Sibling story – Sean

Sibling story – Owen O’Neill

Sibling story – Owen O’Neill

Sibling Story – Betsy

Sibling Story – Betsy

Tilly

Tilly

Lolo

Lolo

Trent and the 100,000 Genomes Project

Trent and the 100,000 Genomes Project

Being undiagnosed and becoming a Parent Rep

Being undiagnosed and becoming a Parent Rep

Evie

Evie

Aleysha

Aleysha

Oscar

Oscar

Steven

Steven

Brody

Brody

Evana

Evana

A little insight

Big Brother

Journey to diagnosis: Alex

Journey to diagnosis: Alex

Sibling story – Rhiannon

Sibling story – Rhiannon

Ethan walks for SWAN UK

Ethan walks for SWAN UK

What getting a diagnosis can mean

What getting a diagnosis can mean

A poem for Undiagnosed Children’s Day

A poem for Undiagnosed Children’s Day

Harrison

Harrison

Undiagnosed and Invisible

Undiagnosed and Invisible

Eve

Eve

Patrick

Patrick

Harry’s story

Harry’s story

Oakley’s story

Oakley’s story

Ethan

Ethan

Introducing Lillyana

Introducing Lillyana

Hermione

Hermione

Ava-Rose’s Story

Ava-Rose’s Story

Introducing the O’Shea family

Introducing the O’Shea family

Juliette’s Story

Juliette’s Story

Julia and Maddie

Julia and Maddie

Charlotte, Alex and Dylan

Charlotte, Alex and Dylan

Joshua

Joshua

Welcome to the Arvo-world

Welcome to the Arvo-world

Cayden

Cayden

Freddie

Freddie

Maxwell

Maxwell

Caitlin Rose

Caitlin Rose

Finlay

Finlay

Evie

Evie

Scott’s story

Scott’s story

Kian’s Story

Kian’s Story

Life of a rural swan

Life of a rural swan

Eiden

Eiden

The Impact of an Undiagnosed Condition

The Impact of an Undiagnosed Condition

Questions and answers

Questions and answers

Tales of the unexpected – Jack’s story so far

Tales of the unexpected – Jack’s story so far

Blindsided

Blindsided

A very special day in the undiagnosed community

A very special day in the undiagnosed community

Sibling Story – Joshua

Sibling Story – Joshua

Fate

The Job Centre

The Job Centre

Introducing Felix

Introducing Felix

Introducing Roo

Introducing Roo

Introducing Indy – Miss Moo!

Introducing Indy – Miss Moo!

Theo’s Story

Theo’s Story

Sibling Stories – Saffron

Sibling Stories – Saffron

My family – life as a single SWAN parent

My family – life as a single SWAN parent

Dylan – A Poem

Sam’s Story

Sam’s Story

Maddie’s Story

Maddie’s Story

Benjamin’s First Year.

Rowan’s Story

Rowan’s Story

Olivia’s Story

Olivia’s Story

Join our community of families

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Support

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Information

  • What is a syndrome without a name?
  • Why is a diagnosis important?
  • How do I access genetic testing?
  • Undiagnosed – a documentary

Genetic Alliance UK provides the secretariat for the following parliamentary groups on Rare, Genetic and Undiagnosed Conditions:

  • The Westminster All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions
  • The Scottish Parliament Cross-Party Group on Rare, Genetic and Undiagnosed Conditions
  • The Welsh Assembly Cross-Party Group on Rare, Genetic and Undiagnosed Conditions

Ethical Collaboration Policy | Privacy Policy | Complaints Policy | Donation Policy | Disclaimer

© Genetic Alliance UK 2018

SWAN UK is a support network run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.

 

Genetic Alliance UK registered charity numbers: 1114195 & SC039299.

 

Registered company number: 05772999