Raising a child affected by a syndrome without a name can be a very isolating experience. By joining SWAN UK you will be able to make contact with other families who understand just how worrying and frustrating it can be.
‘Without a diagnosis there was no place for me in groups/organisations for diagnosed conditions and syndromes. It is important for me to have somewhere where we are all ‘in the same boat’ even though our Swans have varying needs and difficulties.’ SWAN UK Member
Membership is free for any family affected by a syndrome without a name living in the UK.