My name is Sean. I am nearly nine years old. In March 2010 I had a little brother. His name is Hugh. He is seven.
I love my little brother and I wouldn’t want anything to change about him. The older I get, the funnier he gets. He makes me laugh every day. I enjoy playing games with Hugh and watching films. He is really good at making people laugh and making them smile.
Hugh can’t walk around or run around with me. But I like to push him around in his wheelchair and make him feel like he is playing with us.
Sometimes it makes me sad if I think about it because all of my friends’ brothers and sisters aren’t disabled, but I would never want him to change from who he is.
Sometimes Hugh has seizures and that really scares me. I hope the doctors can find a way to cure his seizures.
SWAN UK helps me and my family to meet more people who have a similar condition to Hugh and that helps me make friends – I have someone to talk to and they understand how it feels to have a family like this and what it’s like when your brother or sister is in hospital.
It’s sometimes hard to find a place to do my reading or homework if Hugh isn’t well or isn’t in a good mood but that doesn’t bother me too much. Sometimes it makes me sad if I’m supposed to be doing something nice with my friends but Hugh has to go to hospital and then I can’t go out.
The best thing about having Hugh as my brother is having sleepovers in his room every now and then. We both love each other very much. He is the best brother that I could have ever had.