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Sibling Story - Betsy

Last Reviewed 01/11/2017

By swan uk member, Betsy Willingham

My name is Betsy, I am seven years old and I live with my mummy and daddy and twin brother and sister Lucas and Hope. We live in Plymouth in a house that we can get a wheelchair in to.

My brother Lucas is ten. He can’t walk, can’t talk and can’t go on rides - only disabled ones. He has a tracheostomy and a tube in his tummy for food. He has seizures – they are horrible and he needs oxygen. Seizures upset the whole family. If Lucas wasn’t disabled things would be different – he would play with me in my bedroom. He can’t go upstairs.

I enjoy playing with Lucas. I play with his toys and talk to him. He likes the roundabout, windy weather and flying kites. He is a cheeky boy! He likes my slinkys and he ruins them.

Lucas has lots of disabilities. It makes me feel down in the dumps and sad. I don’t think Lucas minds as he gets to sit down all the time.

It doesn’t matter – he is a joyful boy and what difference would a diagnosis make? I don’t know. I can’t change one thing, it has to be two. I would stop the seizures and make him talk.

Lucas goes to hospital lots and to Bristol. Hope and I go to Granny and Granddads. We worry about him and miss Mummy, Daddy and Lucas. It’s not nice it upsets me. I think having Lucas makes Mummy upset and happy at the same time. The hardest thing is going out with his wheelchair – it’s very big. The best thing about going out with Lucas is queue jumping. We go to Peppa Pig world with SWAN UK. We like it there because Lucas can have his pad changed on a changing bed.

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