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‘Like trying to read a map in the dark’ syndromes without a name, service use and further research

Last Reviewed 08/06/2018

By Miriam Ingram, SWAN UK

The report, ‘Like trying to read a map in the dark’ syndromes without a name, service use and further research, was produced by Genetic Alliance UK and Birmingham Children’s Hospital, Birmingham Women’s and Children’s NHS Foundation Trust. It was published on Undiagnosed Children’s Day, 27 April 2018. 

Click here to read the report.

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