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Aims 
- To campaign on behalf of families who have a
child with an undiagnosed condition + gain equal rights + recognition
- To provide support and information on a variety of subjects
- To provide a listening ear through our helpline / email
- To link families together for mutual support and exchange of
information
- To develop a database to help us to link families more effectively
and will, we hope, enable us to provide material for research
into these conditions
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